Read about how this Mom is helping other people’s dreams come true.
Check out the video below! This summer pilot program for kids who may have any type of challenge is up and running. As I sit back and watch, it is like this program is meant to be. So many people are coming together to make it successful. It is a testament to when many people work together and bring their individual talents for the good of the group and for the good of others, amazing things can happen.
My Top 10 From First Punch, so far.
2. The Laughter
3. The fierce look on a six year old’s face when hitting a punching bag
4. The intense focus of a shy 13 year old when hitting mitts in the boxing ring
5. The New Logo
6. Our T-Shirts
7. The Hugs
8. The sweat that makes me know the kids were challenged
9. The Support from the boxers’ parents
10. And most of all the cadence and chant when we all break it down at the end and together say 1,2,3…. First Punch
The past seven years for me has been an incredible journey. I have been to a place that I never dreamed I would go. I have experienced a world right in front of me that struggles to fit in, keep up, and is often on the sidelines of life. My journey has been a spinal tumor, spinal cyst, and finally a Parkinson’s diagnosis through which I have discovered a whole new world of pain, struggle, fear, healing, acceptance, beauty, and joy. It is the world of the disabled or those with special needs.
From 2010 – 2015 I lived in that world as I watched and experienced my body succumb to the attacks of Parkinson’s. Slowly, my body began to stiffen and fail. I was losing my balance, my movement, my strength, and my smile. On July 28, 2015 I visited a doctor who prescribed for me a new medication. Miraculously, in one hour after being on that medication, I came back from my journey and the experience of being disabled. Although, I still have the same diagnosis, I am back to my almost fully functional self. There is no cure for Parkinson’s. I will most likely regress someday. I write this to you today because I sit here with the gift of my health back for an undetermined amount of time. Praise God.
For a while I have stepped out of the world of disability, but I cannot leave my friends behind. My friends are the little ones with challenges who I would see in the halls of the schools where I have worked for 24 years as a school counselor. I now have an amazing window into their world, our world in reality.
Our purpose for the First Punch Boxing for Kids with Challenges is to bridge that gap and bring strength and hope and to give kids the courage to step up and battle the challenges they face in their world.
I am a funny, fun, in love with life person. Parkinson’s tried to steal that from me. Parkinson’s lost. Hope won. The fear is gone. I want to share this hope with kids experiencing challenges in their lives.
I have so many people for whom I am thankful and so many more to whom I need to reach out and help.
Will you partner with us to fund this pilot program for the summer of 2017?
Let’s make it happen!
FIRST PUNCH – Noncontact Boxing for Kids with Challenges https://www.kickstarter.com/projects/147552517/first-punch-noncontact-boxing-for-kids-with-challe
Sometimes reality makes me come to the surface and truly face what is happening in my brain. That is what happened yesterday at my appointment with my neurologist. From the moment he walked in the door, I knew he was analyzing my every move, word, and expression. He was looking for signs of regression, and that makes me have to face for a moment the physical changes that are slowly happening to me. At these times I feel like I can’t tread water or swim fast enough to get away from the raw reality of it.
I knew going into this appointment that I have noticed that my meds were not working as well. I guessed there was some regression, but yesterday I had to face it, grieve it, and feel it. It was a hard day.
This morning the sun is shining. I hear the birds singing, and I plan on living today to the fullest.
…… And I plan to submerge myself in the tranquility of denial, not denial that I have Parkinson’s.Today I will drown myself in the comfort that it does not define me. I will deny this disease any power over me. Today I will push back any fear that has resurfaced and focus on the beautiful routine of the day.
Today I will drift and let the current pull me far away from any negativity and closer to my creator. Today I will trust my God. Today I will quit fighting the undertow of faith and belief in a bigger plan than I can see. There is a bigger and plan than pain and suffering.
That is until July 25, my next neurologist appointment. Then I will have to resurface again, but only for a day!
I am warning you things are changing. The way we look at the word disability is fighting to change. At this time I know a 17 year old girl with Down’s who hosts her own cooking show. Another girl with this characteristic is applying at some of the most prestigious colleges in our country. In this video, my little Bella doesn’t see her Cerebral Palsy. She sees her self as a strong fighter, as she should.
World, you have to change. Some of us may do things differently than the typical person, but we are fighting. We matter, everyone of us.
And if you find yourself with the opportunity to assist us in some way, be thankful. You will most likely learn a great deal from our strength and from our challenges.
If you find yourself spending time with us, you will know a deeper meaning of life. You will have more compassion. You will wrestle with your own perception of what is important in life– and the lines drawn in the sand of what is a disability may just get blurred and forgotten. You might see us not as a person with Down’s, CP, Autism, Parkinson’s, ALS, etc. You might see us as the girl with curly hair. The boy who is funny. The mom who writes. You may find that it is fun to spend time with us.
World, We are fighters. Like Bella in this video, we will not rest until you see and know us for who we are. And when you finally open your eyes, you will see how boring the world would be without us.
World, We are not broken. You are. We were fearfully and wonderfully made, just like everyone one that inhabits you. World, don’t ignore us. Being ignored is the worst pain.
From One who who sometimes acts like she is from another planet,